The DSG membership meets annually to discuss progress and new projects.

Two large multi-center trials have been successfully completed by the DSG. These trials included a total of 36 investigators and recruited 242 dystonia patients. Both trials are published and sub-analysis of the study data presented at major neurological meetings.

In October 2006, the Dystonia Study Group (DSG) and Dystonia Medical Research Foundation (DMRF) jointly sponsored a dystonia ratings scale workshop that attracted 18 major dystonia researchers, resulting in a report of the strengths and limitations of currently available rating scales and a road map for future scale development.

The DSG collaborates with the Dystonia Medical Research Foundation in the Cure Dystonia Initiative.